Diagnosed and Living with Scleroderma

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Are you living with scleroderma?

If you or someone you know has recently been diagnosed and living with scleroderma, it’s time to learn how have quality of life despite the symptoms. Hopefully you’ve read our informative article on “What Is Scleroderma” to find out some facts.

Living With Scleroderma – quality of life

It is possible to live with the disease and have quality of life. Like any disease, taking the steps to make your life easier and learning how to deal with the symptoms you may be experiencing is important.

  • Treatment is imperative – Once diagnosed treatment is very important. Mild scleroderma has the possibility of becoming worse if it is not treated properly; it is best to have a team of health professionals working with you on a regular basis.
  • Mention any changes – Because everyone is different in their symptoms, it is important that you don’t dismiss any changes in your body. Scleroderma is a real disease with real symptoms and changes that occur in your body.
  • Healthy diet – Diet is always an important factor when dealing with any disease. When you are living with scleroderma you want to maintain a healthy weight as it helps minimize the weight put on your joints, while also providing your body & its organs with the proper nutrients.
  • Keeping active – While it may be hard to make yourself get up and move at times, it is very beneficial to your health and in controlling the symptoms of scleroderma. Often, exercising in water will help alleviate any weight bearing on your joints and help make moving easier.
  • Eating an anti-inflammatory diet – There are a number of foods and spices that have anti-inflammatory properties to them. WebMD talks about the proper anti-inflammatory food diet, spices, and supplements; however, always check with your physician before going on any diet program.
  • Listen to your body – Your body will tell you when it is tired and there is nothing wrong with listening to what it’s telling you. Know your limits, stay well rested and understand that tiredness is not the same as laziness; your body needs rest.
  • Hygiene – Because scleroderma can affect both your skin and your organs, hygiene is very important. Your specialist will tell you how to care for your skin and taking proper care of your overall hygiene will help decrease the chances of being affected with a disease that could tax your body and its organs.
  • Have a support system – You need a support system to help you while living with scleroderma. Your support system includes not only the health care professionals but those who help with every day caregiving, your family, and perhaps a local support group.

Your Body With Scleroderma

The Scleroderma Foundation has an interesting page that interacts with reader, showing how living with scleroderma affects the body. Being well informed is important to realizing when a symptom is arising and what measures you need to take in order to live a high quality of life, despite living with scleroderma.


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